Bili Attends the Gastrointestinal Cancer Symposium & 2015 Cholangiocarinoma Foundation Annual Stakeholder Conference
The Bili Project Foundation had the pleasure of attending both the Gastrointestinal Cancer Symposium and the 2015 Cholangiocarinoma Foundation Annual Stakeholder Conference earlier this year.
The GI ASCO, which is an internationally renowned Gastrointestinal Cancers Symposium that was held in San Francisco, California in January 2015. GI ASCO is a high-profile, specialized oncology event designed for the exchange of the latest research and science with physicians and scientists on cancers of the pancreas, small bowel, and hepatobiliary tract; colon and rectum; and esophagus and stomach. During the event, The Bili Project Foundation co-hosted an exhibitor booth in the ballroom with The Cholangiocarcinoma Foundation and attended the Gastrointestinal General Poster Sessions where we were able to hear and discuss cutting-edge Gastrointestinal cancer research with scientists and physicians from around the world. The Bili Project Foundation is proud to be involved in funding such meaningful research at UCSF for Hepatobiliary Cancers.
We also attended the 2015 Annual Stakeholder Conference in Salt Lake City, Utah last week. During the meeting, some of the world’s most brilliant scientists and physicians from around the world presented current data on translational and basic research activities involving Cholangiocarcinoma. During the 2014 Annual Stakeholder Conference these scientists and physicians met in-person and collaborated on projects and research proposals, and therefore, we were able to witness the incredible progress these projects have made throughout the past year while we attended the 2015 conference. Additionally, our co-founder, Susan Acquisto is Chair of the Cholangiocarcinoma Foundation Nursing Advisory Board comprised of nursing experts from large cancer center institutions around the country and presented their groundbreaking work of developing Nursing Care Guidelines for patients with Cholangiocarcinoma which will be submitted for publication in peer reviewed journals of Nursing. Our Bili Research Team from UCSF attended both the 2014 and 2015 conferences as well where they were actively involved in forming collaborative research teams with other scientists and physicians from around the country. During the 2015 Conference our Research Team at UCSF was able to present their collaborative findings over the past year. The Bili Project Foundation is excited to continue funding UCSF’s Hepatobiliary Cancer Research Program, where groundbreaking research is underway.
For more information on both events please visit the links below:
Gold medalist, Ed Moses is halfway to fully completing his personal goal of raising $20, 000 this year for the Bili Project Foundation! He participated in “Gaming to Give” and selected The Bili Project as the charity to donate his winnings. He won first place and donated his winnings of $10,000 to the foundation.
Up next for Ed is the L.A. Marathon where he will be participating as part of Team Bili in the Charity Relay. Can you help him reach his goal and support him by simply clicking the “DONATE” button on the top of the page and make a pledge in his name. This is a perfect example of the good that can be done when we all “play our part.”
“Gaming to Give” consists of various celebrities playing the game “Super Smash Bros” on Nintendo Wii, in a tournament style format to win money for their charity. Some of the many celebrities confirmed to attend the event are former Green Bay Packers Running Back Ahman Green, recording artist Brian McKnight, Detroit Lions Safety James Ihedigbo, St. Louis Rams Guard Davin Joseph, New York Giants Punter Steve Weatherford, Arizona Cardinals Linebacker Lorenzo Alexander, Baltimore Ravens Tight End Crockett Gilmore, Minnesota Vikings Wide Receiver Charles Johnson, and Olympic Gold Medalist Swimmer Ed Moses.
The Bili Project Foundation is sad to make this update. It has been a rough two months!
We lost two amazing people to hepatobiliary cancer – Andrea Scott and Rick Babich. Both Andrea and Rick were Bili supporters and attended our fundraising Gala on August 3rd. They were both in good spirits and shared their story with us very candidly at the event.
Andrea was a mom, a daughter and a wife, who only wanted to set a good example for her boys. She was diagnosed with intrapathetic cholangiocarcinoma in April of 2013 and died in November 2014.
Rick was diagnosed with pancreatic cancer in May 2014. Rick shared that one day he just started to feel lethargic and had no desire to go to the gym. As the days went by, his energy level dropped even more and he started to lose his appetite. At that point he decided to check things out. The first doctor told him: “Your labs are fine, see you next year.” Dissatisfied, he consulted a second doctor. This doctor had him see a urologist to do an ultrasound and then followed up with a CT scan. The CT scan revealed an inoperable, untreatable, pancreatic cancer.
Both Rich and Andrea were friends of the foundation and we are deeply saddened by this loss.
Please join us in sending condolences to their families.
The 2014 Vince Acquisto Memorial Golf Tournament took place on Monday, October 13, 2014 at the beautiful Blackhawk Country Club in Danville, California. Those who attended enjoyed a day of fun and networking as funds were raised for The Bili Project Foundation in memory of Vincent Acquisto.
The foundation raised nearly 10k which will go towards the continued research in to the study of Hepatobiliary Cancers.
Check out a few highlights and photos from the event!
- The event was a huge success and we were able to raise about $10,000 for The Bili Project Foundation. 100% of the proceeds raised will go towards research of Hepatobiliary Cancers to hopefully provide treatment options and early detection indicators in the future for those suffering from Hepatobiliary Cancers.
- Mike and Debbie Lax volunteered all day at this years event. Mike is suffering from Bile Duct Cancer and both he and his wife manned the Bili Tee for the entire day. Debbie gave a heartfelt speech during dinner and his family was present with him during the evening reception. It was truly inspirational to have Mike there with his family to show his strength and deamination to fight this disease.
- We had King Bechtel BBQing for the golfers at the 9th hole and Rosanne Wassom with Fahrenheit Wood Fired Pizza of Pleasanton provided dessert pizzas for the golfers at the 1st tee.
- We had the following competitions throughout the day:
- Straightest Shot: Winner was Andrew Ray
- Marshmallow Drive: Winners were Donna Emrich (women) and Peter Tripp (men)
- Closest to the Pin: Winner was Joy Stephenson-Laws
- Longest Drive: Winners were Chuck Acquisto (men) and Lisa Morphis (women)
- Putting Contest: Winner was Rob Perez
- Winning Foursome: Jason Gambonini, Matt Free, Vince Avila, and Rodney Simmons
- On Tee 6 we had a professional golfer where participants could elect to have the golfer take the drive from the tee for them.
- The cocktail hour took place at the Blackhawk Country Club Lakeside Clubhouse with beautiful views overlooking the lakeside golf course. Attendees were able to enjoy their drinks and hors d’oeuvres on the patio or inside where the silent auction took place. When doors to dinner opened, guests were ushered into the clubhouse ballroom where they enjoyed a wonderful Italian themed buffet, live auction and raffle, award ceremony, update from one of the research physicians for The Bili Project Foundation, a heartfelt speech from Debbie Lax, and a message from one of The Foundation’s co-founders, Sue Acquisto.
For more information on how you can join in on the fun at next year’s event please email firstname.lastname@example.org.
The Bili Project Foundation’s Co-Founder, Sue Acquisto, shares her story of how her husband went from complaining of a stomach ache to being diagnosed with Bile Duct Cancer (Cholangiocarcinoma). Sue is now committed to bringing this cancer into the spotlight as well as funding research to find a cure and better diagnostic tools.
Watch this video as our Co-Founder tells the story of her husband and the stomach ache that was later Bile Duct Cancer. Bile Duct Cancer should probably be called the “goodbye cancer” because once diagnosed, that’s about as much time as you have – time to say goodbye to those close to you. Sadly, our Co-Founder had to experience this.
Watch as she shares what it was like trying to avoid saying goodbye to her husband.
Bile Duct Cancer patient who received life expectancy of a couple of months will talk about how clinical trial saved her life – don’t miss live webinar! on Oct 21, 2014.
Sign up for webinar here: http://buff.ly/1z8jeHJ
Melinda Bachini was diagnosed in 2009. She is now 46 years old, and is a wife and a mother of six beautiful children. Now she can add brave, fierce and survivor to her name. In this live webinar, Melinda Bachini will share her journey through diagnosis and treatment as a cholangiocarcinoma (bile duct cancer) patient and study participant.
“I found myself not wanting to spend the rest of the life I had left using a chemo that would not cure me but had already caused so much damage. Chemo was toxic and it was not holding against this growing cancer within me.I found the NIH clinical trial online shortly after this decision.” Melinda Bachini
Also on webinar hear from Steven A. Rosenberg, M.D., Ph.D., National Cancer Institute, Adoptive Cell Therapy pioneer. Adoptive cell therapy uses a technique that harnesses a person’s own immune system to fight cancer & Eric Tran, Ph.D., National Institutes of Health Surgery Branch, Tumor Immunology Section
The Bili Project Foundation 2014 Sonoma Bili Project Experience was a tremendous success in raising funds to support UCSF’s Hepatobiliary Cancer Research Program. Guests of the event were treated to a VIP evening hosted by Cedric “The Entertainer” at the historic General’s Daughter located in Sonoma, California. The event included a plated dinner created by the culinary team at the nationally acclaimed Ramekins Culinary School, live and silent auctions, dancing and an evening socializing with celebrity entertainers and athletes.
Our guests had the extraordinary opportunity to hear from two very brave and inspiring individuals battling Hepatobiliary cancers, both of whom gave very heartfelt and moving first-hand accounts of living with and battling these diseases. The Bili Project foundation was truly honored to host these two individuals who are a true inspiration for all of us to stay strong and remain positive in the face of adversity.
Dr. Robert Kerlan of UCSF attended our event and presented the extraordinary and cutting-edge research being conducted across the country in Hepatobiliary cancer research. UCSF’s collaboration with other leading institutions to find early detection and treatment options for those suffering from Hepatobiliary cancers has been instrumental in the path to potential groundbreaking research and discoveries. The Bili Project Foundation is honored to have Dr. Kerlan and UCSF as part of Team Bili.
The Bili Project Foundation had the privilege of hosting Marion Schwartz, Board Member and Chief Research Advocate of The Cholangiocarcinoma Foundation, as both a guest and speaker at our event. Marion presented important updates in research advocacy across the country to our guests. The Bili Project Foundation and The Cholangiocarcinoma Foundation have collaborated in their joint efforts to support the institutions’ research of Cholangiocarcinoma.
Excitingly, The Bili Project Foundation has created a video documenting the motivation behind The Bili project Foundation, which was debuted at the event. The video will be released on our website soon!
The following day selected donors and VIP guests enjoyed a private experience at the exclusive and private Sonoma Golf Club, including a celebrity golf outing benefiting The Bili Project Foundation and UCSF’s Hepatobiliary Cancer Research Program.
The Bili Project Foundation is committed to our mission of reducing the incidence and improving the outcome of Hepatobiliary cancers. To continue this fight, The Bili Project Foundation is proud to be a participating charity in the upcoming 2015 ASICS LA Marathon. Team Bili will be participating in the LA 5K and LA marathon to continue raising awareness of Hepatobiliary cancers. We look forward to your support as we race for future research!
Thanks to everyone that attended the Inaugural Sonoma Bili Project Experience. It was an amazing night and we are grateful for all your support. Special thanks to the Bili team, Cedric “The Entertainer”, Scott Erickson, Jim Plunkett, Barry Bonds, Robert K. Kerlan, Jr. MD, Andrea Scott and Rick Babich.
Event photos coming soon!
The Bili Project Foundation was fortunate enough to be a Participating Charity in the 2014 Asics LA Marathon. Team Bili did an amazing job as they hit the streets of LA, all to raise awareness of The Bili Project Foundation and it’s mission. The Bili Project Foundation is truly honored to receive this Certificate of Achievement and we look forward to next years marathon!