Category Archive for: ‘Education’

HBTB Patient Enrollment Numbers Continue to Grow!

Currently, as of September 30, 2017, there are 365 patients with banked samples in the UCSF Hepatobiliary Tissue Tumor Bank. The Foundation believes that the ongoing maintenance of such a bank, specifically for Hepatobiliary tumors, will significantly enhance the ability to accurately diagnose and treat patients with these deadly diseases.

The graph below summarizes the patient enrollment data for the Hepatobiliary Tissue Bank. When the HBTB was activated it started out with 25 cases that were migrated from a pre-existing collection – a clinical trial that began years before the tissue bank opened. The UCSF Medical team definitely has made significant strides in obtaining samples to continue research efforts in finding early detection methods and treatments towards a cure for hepatobiliary cancers.

The collaboration map below shows the institutions across the nation who are working and collaborating together on several projects involving hepatobiliary cancers. See below to find some of our newest institutions join in as an HBTB Specimen/Data Collaborators. The various projects include genome wide association studies and retrospective studies wherein UCSF accesses the repository of specimens and data in the bank. This sharing of data and specimens allows UCSF, a regional cancer center along with these highly respected cancer hospitals and institutions to work together to advance hepatobiliary cancer research.

HBTB Patient Enrollment Numbers Are Growing!

Currently, as of February 9, 2017, there are 322 patients with banked samples in the UCSF Hepatobiliary Tissue Tumor Bank. As mentioned before, the Foundation believes that the ongoing maintenance of such a bank, specifically for Hepatobiliary tumors, will significantly enhance the ability to accurately diagnose and treat patients with these deadly diseases.

The graph below summarizes the patient enrollment data for the Hepatobiliary Tissue Bank. When the HBTB was activated it started out with 25 cases that were migrated from a pre-existing collection – a clinical trial that began years before the tissue bank opened. The UCSF Medical team definitely has made significant strides in obtaining samples to continue research efforts in finding early detection methods and treatments towards a cure for hepatobiliary cancers.

 

The collaboration map below shows the institutions across the nation who are working and collaborating together on several projects involving hepatobiliary cancers. See below to find some of our newest institutions join in as an HBTB Specimen/Data Collaborators. The various projects include genome wide association studies and retrospective studies wherein UCSF accesses the repository of specimens and data in the bank. This sharing of data and specimens allows UCSF, a regional cancer center along with these highly respected cancer hospitals and institutions to work together to advance hepatobiliary cancer research.

Today is World Cholangiocarcinoma Day!

World Cholangiocarcinoma Day is an international effort to raise much-needed awareness of Cholangiocarcinoma, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally – we believe collaboration is the way forward.

To help spread the word, our sister company – The Law Offices of Stephenson, Acquisto & Colman helped us to further raise awareness by playing the #WhispersGame. Cholangiocarcinoma is the cancer no-one can say and no-one talks about. So, it’s time to get the word out, help to fight this disease and help to spread the word. Are you ready for the challenge? It’s now your turn! #WorldCCADay

You can learn more about World Cholangiocarcinoma Day HERE.

World Cholangiocarinoma Day 2017

World Cholangiocarcinoma Day is an international effort to raise much-needed awareness of cholangiocarcinoma, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally – we believe collaboration is the way forward.

The Bili Project Foundation is proud to be a partner in the second ever World Cholangiocarinoma Day in an effort to raise awareness of this silent killer.

WANT TO GET INVOLVED?

Share the global awareness message on social media, and with friends and family.

We need your help to raise much needed awareness of cholangiocarcinoma. Become part of the collective voice of those advocating for patients with this devastating cancer. Join with us in telling the world that cholangiocarcinoma is a cancer that can’t be ignored.

KEY POINTS

  • Many don’t know what cholangiocarcinoma is, and that lack of awarenesss is a major problem.
  • Most with cholangiocarcinoma are diagnosed too late for potentially curative surgery – ways to
    earlier diagnosis are desperately needed.
  • We need to stand together and tell the world that cholangiocarcinoma is a cancer that can’t be ignored.
  • We need to talk about cholangiocarcinoma.
  • Find out more about cholangiocarcinoma on the pages CCA: The facts and CCA: The statistics
    and on the websites of the World Cholangiocarcinoma Day partners listed on the Home page.
Visit wwww.worldcholangiocarcinomaday.org for more information.

*All information courtesy of WorldCholangiocarinomaDay.org

Minerals! The Forgotten Nutrient

The Bili Project Foundation to Benefit From Sales of New Book!

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We’ve got some exciting news to share! The Bili Project Foundation’s Co-Founder, Joy Stephenson-Laws, has written a book and part of the proceeds will benefit The Bili Project Foundation. There is a chapter that discusses the relationship between minerals and cancer and we hope you will support our foundation by purchasing this book or considering gifting it to a loved one.

Remember, it’s never too late to start taking steps to improve your health.

 Click HERE to purchase!

The 7th Annual Ruesch Symposium is Just Weeks Away!

Join us at the 7th Annual Ruesch Symposium, December 1,2,3!

CLICK HERE to view the current agenda. Patients and caregivers are encouraged to attend.

The Ruesch Center for the Cure of Gastrointestinal Cancers Mission: Combining expertise in molecular medicine, translational research, and a patient-centered philosophy, the Ruesch Center will realize the dream of individualized curative therapies through research, care, and advocacy.

This years program will broken out into 3 parts over the course of 3 days with the last day featuring a patient symposium.

  • PART 1 of the Symposium, on December 1, “GI Cancers 2016: Year in Review,” will present disease-specific in-depth updates on progress in research and care of GI cancer patients, from our Ruesch medical oncology team.
  • PART 2 of the symposium, on December 2, is titled, “Collaborative Cancer Care – A Multidisciplinary Approach,” and will include interactive sessions related to the multidisciplinary management of GI cancer care. Content will be presented in three tracks; Medical Oncology, Surgery/Radiation Oncology, and Nursing/Patient Advocacy interspersed with plenaries focusing on key areas of change in GI.
  • PART 3,our Patient Symposium on December 3 will bring patients and family’s disease-specific information and education, tools for managing their cancer care, and engage them in a discussion of the promise of emerging therapeutic approaches in cancer care and the concerns related to understanding the growing array of treatment options.

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SURVEY: Identifying The Unmet Needs Of GI Cancer Patients

On behalf of the GI Cancers Alliance, co-chair Martha Raymond created a brief 12 question survey to assess the unmet needs of the GI cancer patient & survivor community. Identifying & better understanding these unmet needs will help shape our programming and education efforts for @GICAlliance moving forward.

CLICK HERE to complete.

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The Bili Project Joins GI Cancers Alliance

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FOR IMMEDIATE RELEASE

 

 The Bili Project Foundation Joins GI Cancers Alliance to Elevate Patients’ Voices Against Gastrointestinal Cancers

Twenty organizations unite to raise awareness, provide education and advocate for gastrointestinal cancers

Burbank, CA (JUNE 7, 2016) —  The Bili Project Foundation joins 19 other cancer advocacy groups from around the United States to form the GI Cancers Alliance, committed to the fight against gastrointestinal cancers, which include many of the leading cancer killers.

The mission of the GI Cancers Alliance is to raise awareness, provide education and advocate for the prevention, treatment and cure of gastrointestinal cancers through a collaboration of advocacy groups, industry and institutional partners.

The groups’ organizers have come together because of a shared goal to create a stronger more unified voice in the fight against gastrointestinal cancers.

The groups’ leadership met June 4 during the ASCO Annual Meeting in Chicago to elect its chairs: John Hopper, executive director of the Fibrolamellar Cancer Foundation, and  board director of the National Pancreas Foundation; and Martha Raymond, executive director of Michael’s Mission and founder/CEO of The Raymond Foundation and Alliance co-chair.

In addition to The Bili Project Foundation, the 19 other organizations of the Alliance include Pancreatic Cancer Action Network, Colon Cancer Alliance, Prevent Cancer Foundation, Beat Liver Tumors,  The Cholangiocarcinoma FoundationColon Cancer Challenge, Debbie’s Dream Foundation: Curing Stomach Cancer, Esophageal Cancer Action Network, Fibrolamellar Cancer Foundation, Fight Colorectal Cancer, Gastric Cancer Foundation, Global Liver Institute, Hope for Stomach Cancer, Michael’s Mission, National Pancreas Foundation, No Stomach for Cancer, The Raymond Foundation, The Ruesch Center for the Cure of GI Cancers, and Target Cancer Foundation.

The participating groups represent the various types of cancers that make up gastrointestinal cancers, or the group of cancers that affect the digestive system. This includes cancers of the esophagus, gallbladder, bile duct, liver, pancreas, stomach, small intestine, bowel (large intestine or colon and rectum) and anus.

Lilly Oncology and Taiho Oncology are the founding industry non-voting members of the GI Cancers Alliance. They provide funding for advocacy activities and education.

The Alliance will focus on creating programs to raise general awareness about GI cancers and create resources and tools that will fill gaps for patients where they can make the largest impact.

 

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Today is the Day!

TODAY IS THE DAY! World Cholangiocarcinoma Day is an international effort to raise much-needed awareness of cholangiocarcinoma, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally – we believe collaboration is the way forward! Let’s make a difference and SPREAD AWARENESS about this little known cancer. #WorldCCADay

A Bile Duct Cancer Story of Hope: Michael Lax

Michael Lax tells his bile duct cancer story of hope. In May 2014, Michael was diagnosed with Cholangiocarcinoma. After undergoing surgery, in January 2015, Michael was declared cancer free.

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