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SURVEY: Identifying The Unmet Needs Of GI Cancer Patients

On behalf of the GI Cancers Alliance, co-chair Martha Raymond created a brief 12 question survey to assess the unmet needs of the GI cancer patient & survivor community. Identifying & better understanding these unmet needs will help shape our programming and education efforts for @GICAlliance moving forward.

CLICK HERE to complete.


The 2016 Vince Acquisto Memorial Golf Tournament was a Success!

More than 85 golfers tee’d it up at the 5th Annual Vince Acquisto Memorial Golf Tournament on Monday, October 10, 2016, at Blackhawk Country Club. The winning foursome in the scramble format was Ed Moses, Neil Melloy, Greg Handy and Scott Mattic. Paula Wogan won the Marshmellow drive and Karen Maxwell won the Womens longest drive.

After the round of golf, dinner guests enjoyed a cocktail hour featuring a silent auction featuring golf memorabilia and wine. The foundation raised a grand total of $18,665.79 which will go towards continued efforts in finding a cure for hepatobiliary cancers.

For more information on how you can join in on the fun at next year’s event please email

The Bili Project Joins GI Cancers Alliance




 The Bili Project Foundation Joins GI Cancers Alliance to Elevate Patients’ Voices Against Gastrointestinal Cancers

Twenty organizations unite to raise awareness, provide education and advocate for gastrointestinal cancers

Burbank, CA (JUNE 7, 2016) —  The Bili Project Foundation joins 19 other cancer advocacy groups from around the United States to form the GI Cancers Alliance, committed to the fight against gastrointestinal cancers, which include many of the leading cancer killers.

The mission of the GI Cancers Alliance is to raise awareness, provide education and advocate for the prevention, treatment and cure of gastrointestinal cancers through a collaboration of advocacy groups, industry and institutional partners.

The groups’ organizers have come together because of a shared goal to create a stronger more unified voice in the fight against gastrointestinal cancers.

The groups’ leadership met June 4 during the ASCO Annual Meeting in Chicago to elect its chairs: John Hopper, executive director of the Fibrolamellar Cancer Foundation, and  board director of the National Pancreas Foundation; and Martha Raymond, executive director of Michael’s Mission and founder/CEO of The Raymond Foundation and Alliance co-chair.

In addition to The Bili Project Foundation, the 19 other organizations of the Alliance include Pancreatic Cancer Action Network, Colon Cancer Alliance, Prevent Cancer Foundation, Beat Liver Tumors,  The Cholangiocarcinoma FoundationColon Cancer Challenge, Debbie’s Dream Foundation: Curing Stomach Cancer, Esophageal Cancer Action Network, Fibrolamellar Cancer Foundation, Fight Colorectal Cancer, Gastric Cancer Foundation, Global Liver Institute, Hope for Stomach Cancer, Michael’s Mission, National Pancreas Foundation, No Stomach for Cancer, The Raymond Foundation, The Ruesch Center for the Cure of GI Cancers, and Target Cancer Foundation.

The participating groups represent the various types of cancers that make up gastrointestinal cancers, or the group of cancers that affect the digestive system. This includes cancers of the esophagus, gallbladder, bile duct, liver, pancreas, stomach, small intestine, bowel (large intestine or colon and rectum) and anus.

Lilly Oncology and Taiho Oncology are the founding industry non-voting members of the GI Cancers Alliance. They provide funding for advocacy activities and education.

The Alliance will focus on creating programs to raise general awareness about GI cancers and create resources and tools that will fill gaps for patients where they can make the largest impact.



Support Bili While You Shop!


You shop. Amazon gives.

  • Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the charitable organization of your choice.
  • AmazonSmile is the same Amazon you know. Same products, same prices, same service. 
  • Support The Bili Project Foundation by starting your shopping at Just start here every time you shop!
  • Select The Bili Project Foundation as your go-to charity and a portion will automatically go towards our foundation.

Battling Bile Duct Cancer: Founder’s Story

The Bili Project Foundation’s Co-Founder, Sue Acquisto, shares her story of how her husband went from complaining of a stomach ache to being diagnosed with Bile Duct Cancer (Cholangiocarcinoma). Sue is now committed to bringing this cancer into the spotlight as well as funding research to find a cure and better diagnostic tools.

Watch this video as our Co-Founder tells the story of her husband and the stomach ache that was later Bile Duct Cancer. Bile Duct Cancer should probably be called the “goodbye cancer” because once diagnosed, that’s about as much time as you have – time to say goodbye to those close to you. Sadly, our Co-Founder had to experience this.

Watch as she shares what it was like trying to avoid saying goodbye to her husband.

Using Patients’ Own Immune System to Knock-out Cancer: Adoptive Cell Therapy


Bile Duct Cancer patient who received life expectancy of a couple of months will talk about how clinical trial saved her life – don’t miss live webinar! on Oct 21, 2014.

Sign up for webinar here:

Melinda Bachini was diagnosed in 2009. She is now 46 years old, and is a wife and a mother of six beautiful children. Now she can add brave, fierce and survivor to her name. In this live webinar, Melinda Bachini will share her journey through diagnosis and treatment as a cholangiocarcinoma (bile duct cancer) patient and study participant.

“I found myself not wanting to spend the rest of the life I had left using a chemo that would not cure me but had already caused so much damage. Chemo was toxic and it was not holding against this growing cancer within me.I found the NIH clinical trial online shortly after this decision.” Melinda Bachini

Also on webinar hear from Steven A. Rosenberg, M.D., Ph.D., National Cancer Institute, Adoptive Cell Therapy pioneer. Adoptive cell therapy uses a technique that harnesses a person’s own immune system to fight cancer & Eric Tran, Ph.D., National Institutes of Health Surgery Branch, Tumor Immunology Section

An Event to Remember!

The Bili Project Foundation 2014 Sonoma Bili Project Experience was a tremendous success in raising funds to support UCSF’s Hepatobiliary Cancer Research Program.  Guests of the event were treated to a VIP evening hosted by Cedric “The Entertainer” at the historic General’s Daughter located in Sonoma, California.  The event included a plated dinner created by the culinary team at the nationally acclaimed Ramekins Culinary School, live and silent auctions, dancing and an evening socializing with celebrity entertainers and athletes.

bili_4Our guests had the extraordinary opportunity to hear from two very brave and inspiring individuals battling Hepatobiliary cancers, both of whom gave very heartfelt and moving first-hand accounts of living with and battling these diseases.  The Bili Project foundation was truly honored to host these two individuals who are a true inspiration for all of us to stay strong and remain positive in the face of adversity.

Dr. Robert Kerlan of UCSF attended our event and presented the extraordinary and cutting-edge research being conducted across the country in Hepatobiliary cancer research.  UCSF’s collaboration with other leading institutions to find early detection and treatment options for those suffering from Hepatobiliary cancers has been instrumental in the path to potential groundbreaking research and discoveries.  The Bili Project Foundation is honored to have Dr. Kerlan and UCSF as part of Team Bili.

bili_3The Bili Project Foundation had the privilege of hosting Marion Schwartz, Board Member and Chief Research Advocate of The Cholangiocarcinoma Foundation, as both a guest and speaker at our event.  Marion presented important updates in research advocacy across the country to our guests.  The Bili Project Foundation and The Cholangiocarcinoma Foundation have collaborated in their joint efforts to support the institutions’ research of Cholangiocarcinoma.

Excitingly, The Bili Project Foundation has created a video documenting the motivation behind The Bili project Foundation, which was debuted at the event.  The video will be released on our website soon!

The following day selected donors and VIP guests enjoyed a private experience at the exclusive and private Sonoma Golf Club, including a celebrity golf outing benefiting The Bili Project Foundation and UCSF’s Hepatobiliary Cancer Research Program.

The Bili Project Foundation is committed to our mission of reducing the incidence and improving the outcome of Hepatobiliary cancers.  To continue this fight, The Bili Project Foundation is proud to be a participating charity in the upcoming 2015 ASICS LA Marathon.  Team Bili will be participating in the LA 5K and LA marathon to continue raising awareness of Hepatobiliary cancers.  We look forward to your support as we race for future research!

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Hard Work Pays Off

Thanks to everyone that attended the Inaugural Sonoma Bili Project Experience. It was an amazing night and we are grateful for all your support. Special thanks to the Bili team, Cedric “The Entertainer”, Scott Erickson, Jim Plunkett, Barry Bonds, Robert K. Kerlan, Jr. MD, Andrea Scott and Rick Babich.

Event photos coming soon!

Bili_Thank You

The Bili Project Foundation Receives Certificate of Achievement

The Bili Project Foundation was fortunate enough to be a Participating Charity in the 2014 Asics LA Marathon. Team Bili did an amazing job as they hit the streets of LA, all to raise awareness of The Bili Project Foundation and it’s mission. The Bili Project Foundation is truly honored to receive this Certificate of Achievement and we look forward to next years marathon!

Bili Project Certificate of Achievement


The 2014 Sonoma Bili Project Experience

Sonoma Bili Project Experience

Join us on Saturday, August 2, 2014 at General’s Daughter in Sonoma, California for an evening of laughter and entertainment – hosted by Cedric “The Entertainer” – as we raise funds for The Bili Project Foundation.

More details to come. Please check our Sonoma Bili Project Experience event page often. If you have questions regarding The Sonoma Bili Project Experience please email us at or call us at 818.817.0831..

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